VITILIGO Friends "VITFriends"

A Vitiligo Support Community of FRIENDS

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WELCOME Vitiligo Friends


üdvözlöm a vitiligo barátait - Hungarian                                                         benvenuti amici della vitiligine - Italian
selamat datang teman-teman vitiligo - Indonesian                                         Hakuhan no tomodachi o kangei shimasu - Japanese
dobro pozhalovatʹ druzʹya vitiligo - Russian                                                    bun venit prieteni vitiligo  -  Romanian
fáilte roimh chairde vitiligo  -  Irish                                                                   vitiligo doston ka svaagat hai  -  Hindi
sejam bem vindos amigos do vitiligo  -  Portuguese                                       bienvenidos amigos vitiligo     - Spanish                                       



Breaking NEWS


On 7/18/2022 The United State Food and Drug Administration (FDA)  APPROVED a treatment for Vitiligo. See our NEWS page:


https://www.vitfriends.org/news-updates




 
Who are VITFriends?? by aliciaroufs
 

VITFriends will be featured in an upcoming documentary film called "More Than Our Skin" created by Hull Bay Productions


MORE THAN OUR SKIN is a film designed to

incorporate four key elements in telling this

important story. Here are the sections below:

The film, More Than Our Skin will be a

documentary exploring in depth the effects of

living with Vitiligo through the stories of those

who live it.

Through the personal and often painful stories

of eight women (and/or men), More Than Our

Skin will dig into a deeper understanding of

what it means to live with Vitiligo:

  • Stories of falling into deep depression

  • Stories of contemplating suicide

  • Stories of isolation and addiction

  • Stories of death

We want the individuals telling their stories to change the narrative of what people think of Vitiligo. We want to eliminate the stigmas by allowing the viewing audience to meet the people who will share their stories of pain and promise.

To learn more about this film click here




World VITILIGO Conference 2022 in Bloomington, MN was a HUGE success!

Special THANK You to our MN Leader and VITFriends Marketing Director, Alicia Roufs and Team
for a tremendous job!






 
 


Remembering 2019:


Our 2019 National Vitiligo Community Conference and World Vitiligo Celebration was a major success, with over 320 in attendance.


THANKS to the hard work of Dianne Tribbit and the Houston Vitiligo Awareness Movement  Team.    CONGRATULATIONS!


                                                        




                                                                                                                          





********


GuideStar Member   

 Our organization is a Silver-level GuideStar Exchange participant, demonstrating its commitment to transparency.

https://www.guidestar.org/ 



 

Our organization is Listed:  https://www.charitynavigator.org/


     https://www.bbb.org/us/ma/hyde-park/profile/non-profit-organizations/vitfriends-vitiligo-support-group-inc-0021-540925

(How are we doing - We would appreciate your REVIEW)


*******


What is Vitiligo and Who is VITFriends?

by

Katrina Christian

our

N.C. Co-Leader 

 

  *******


 Info about World Vitiligo Day

"World Vitiligo Day is a day to create extensive awareness 

on vitiligo and a day dedicated to all living with vitiligo globally"

Says: Ogo Maduewesi

a Nigerian Vitiligo patient, 

 Founder and Executive Director of the

Vitiligo Support and Awareness Foundation  (VITSAF)

 ******* 

 As we look at the future of Vitiligo,

What is it that we ASK of our Politicians?

-       For Vitiligo to be classified as a disease?

-       For treatment or medications specific to Vitiligo?

-       For Vitiligo to be COVERED by Insurance?

-       For Government funding for Research?

-       For Funding for Support Group and awareness efforts?

The revival of The National Vitiligo Act.

https://www.congress.gov/bill/94th-congress/house-bill/5264

 

*******


VITFriends is a PROUD Member of:

NIH Coalition 

https://www.niams.nih.gov/about/partnerships/niams-coalition/coalition-members#volunteer

 

  Global Vitiligo Foundation

https://www.globalvitiligofoundation.org/global-vitiligo-support-community


Vitiligo Research Foundation

https://vrfoundation.org/



*******


 

YOUR support   -   Any Support

WILL make a difference

  

Shop on at AMAZON-smile, and THEY will

give to VITFriends

https://smile.amazon.com/ch/80-0618761

 

 

 

Quick video on how to use Amazon Smile

 

 


 ******* 

 


Our HISTORIC - 1st World Vitiligo Day Rally 

June 25, 2016

on the  

US Capitol Steps, Washington, D.C.


/https://wvdusa.org/2016-wvd-usa-washington-d-c/

 

 

 

 

This event that was a major success!

 

QUOTE: 

"Look how far we've come"  

-  Alicia Roufs, MN Leader  - 

 

 

https://smile.amazon.com/ch/80-0618761
https://smile.amazon.com/ch/80-0618761
https://smile.amazon.com/ch/80-0618761
https://smile.amazon.com/ch/80-0618761

 

                WEZE RADIO Boston, MA                                       Click for announcement

 

WHAT is VITILIGO

Vitiligo is REAL!   Living with Vitiligo, Eczema, Discoid Lupus, Atopic Dermatitis, Psoriasis, or any other form of skin condition can be for most patients, a physical, mental and emotional challenge; but it IS possible.

https://www.vitfriends.org/what-is-vitiligo 

 

 ******

  

QUICK News Highlights.....

Vitiligo is becoming increasingly prevalent.  


What are your concerns?

 

Our concerns are:

 

* that you would consider helping VITFRIENDS with this work of educating others.

* that you would help us as we support and encourage individuals with Vitiligo.

*  that you would  attend our annual conference and also share it with others.

*  that you would distribute our brochures, flyers and postcards to individual you encounter with Vitiligo.

*  that you would  volunteer to assist at our educational seminars and conference which are held every year

*  that you would pray for this organization.

*  that you would GIVE to this non-profit organization.

 

Please email us your questions: support@vitfriends.org 

                    

           Educate  -  Connect  -  Transform

              Belong...Empower...LIVE!


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